10 Tips to Having an Illness Support Group that Isn't Depressing

If you have a chronic illness or live with chronic pain, it's highly likely that you have attended a support group at least one time since your diagnosis. Did the experience go something like this?

Despite feeling exhausted and in pain, you decided you would attend the group anyways. By the time you got there you were running late, couldn't find the suite number, and finally just parked and hiked to an upstairs room in a dark wing of the hospital. You quietly found a seat, a hard, sticky seat. People smiled at you, but soon they got back to their discussion and it seemed no one was feeling encouraged by it. They argued over the side effects of medicine being worth the benefits, two people tried to convince you to buy a juicer from them, and soon you were ready to run screaming from the room. It's too depressing!

Aren't support groups supposed to be valuable in learning how to cope with illness and encourage one another?

The answer is yes! Studies completed by Dr. David Spiegel have concluded that support groups do in fact improve the quality of life of those who are willing to attend. Recent studies (CANCER, Sept 2007) have show that support groups do not actually increase the lifespan of one who lives with cancer. But regardless, by having one's feelings about her illness validated, her skills of coping with chronic illness are definitely more improved.

You may have attended a support group in the past or perhaps you are looking for leadership ideas for one you are starting. Regardless of how long you have (or have not) participated in one, it's likely that you've seen how quickly the groups can move from being an honest and sharing place to a session of complaints and even quarreling. Would you like some fresh icebreaker games for small groups to perk people up?

Here are 10 ideas to help create some humor and joy in your support group. You can evade some of those bitter moments that can so easily come out in conversation about illness. Some simple planning can make you feel enthused about your next get together. These ideas will work for any groups, from a Rhode Island support group for CFS to a diabetes support group for those in Marion County, Florida. And they a great tool to have when you are creating a proposal for starting up a support group.

1. Before your meeting, cut out some smiley faces and sad faces and glue them on each side of a stick or a plastic knife. When everyone goes around the room to share about their experiences or emotions of the week, ask people to make sure they are able to hold up both "faces'. For example, Beth may say, "I'm not looking forward to my joint replacement surgery and all the rehab afterwards" while holding up the sad side of the stick. And then she flips it to think of something positive to say "I feel blessed though, that the insurance is covering a lot of the expenses and my friends have volunteered to help take care of my children."

2. Rethink your concept of what counts as indoor games for small groups. For example, have everyone bring things for a JOY box and then have everyone choose something to take with them out of it at each meeting. It could be a rubber frog, a favorite poem, a note someone sent, an encouraging book, a silly or sentimental DVD. Have everyone return them by the next meeting to share again.

3. Here's a unique icebreaker for small groups. Make a silly theme song that you use to start the meeting. You can pick a song and make up new lyrics too. Check out comedian Anita Renfroe for some good ideas about how to make a song your own at her web site.

4. Find some goofy props to bring to your meeting. Don't make anyone feel they must use or wear them. (Forcing someone to wear bug antennas may scare them away for good.) But make sure they are available to encourage light-hearted moments before discussing the depressing reasons you are there. You can find hundreds of items for a reasonable price at Oriental Trading Supply.

5. Don't let the group turn into a venting session for one member who insists dominating the conversation. There is often someone who insists on sharing details about diagnosis, treatments, complaints, family troubles etc. If you have someone who fits this description, implement a policy to set a timer. Make it fun by telling people they have 60 seconds to get anything off their chest and they can talk as fast as they want. Does someone want to share about a new alternative treatment? Give him/her a limited time like 1 -2 minutes and then invite people to ask for more details after the meeting.

6. Have everyone bring something to put into a basket of encouragement for someone else. It may be someone who is having surgery from your group or a friend of someone in the group who has just been diagnosed. Brainstorm together about what items people would like, and be sure to remember sometimes the personal notes mean the most. If it's appropriate consider including family members.

7. Go out for one evening just for fun. If everyone want to act their age you may consider a sit down restaurant, or you can head on over to Chuck E. Cheese's or Build-A-Bear. It's a terrific icebreaker for small groups since people who haven't opened up in the group may find this is a more relaxed environment. Consider including family members to participate.

8. Provide handouts or items that encourage people to thrive with illness. For example, National Invisible Chronic Illness Awareness Week always has fun items like bumper stickers, static clings, stickers, pins, mugs, etc. with the different themes like, "My illness is invisible but my hope shines through!"

9. When you schedule guest speakers, remind them that you want to provide the most positive outlook as possible, while still being practical. Invite them to pass out props, encouraging articles. Listen to your speakers before scheduling them. Some illness speakers are quite depressing.

10. Sit down with your group and discuss what kinds of things you could do to create change. Illness often robs people of feeling useful. Even though your group may not be able to physically walk for a charity event, you could work at a registration table, or distribute water. Teens with chronic illness are often a great inspiration in getting a support groups involved in a higher calling. Remind people they can be part of something positive.

Illness can be one of the most isolating experiences people have, and support groups provide a sense of belonging in the midst of this. The levels of relationship that form in the group, however, are significantly influenced by how uplifting the leader makes the group environment. None of us want to leave a meeting feeling worse than when we came, but rather refreshed and motivated to live the best life possible. With just a few changes, your support group can go from being a simple meeting, to becoming a lifeline for those involved.

About the Author

Instant download of more ideas for icebreakers for small groups with your free gift of 200 Ways to Encourage a Chronically Ill Friend from "Beyond Casseroles" by Lisa Copen. Just sign up for a weekly encouragement ezine, HopeNotes.

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